I just checked back to this topic and have a few things to note about the suggestion that people use various disabilities as some sort of an excuse for bad behavior or a cop-out. I'm not the person to address this argument because I'm a neurotypical person (although I am sensitive to the pitfalls of communicating as an 'outsider' with a different communication style, mostly because I was raised in a very, um, unique family) but Amanda of Autistics.org is:
http://ballastexistenz.autistics.org/?p=520
Excerpts:
This is pretty similar to my OP (and was part of the inspiration for it, as I've been mulling over this trend since reading the linked post months ago)
It goes on with detailed explanations, which anyone not familiar with the autism spectra should really take some time to read as they explain quite a lot of the things that puzzle neurotypicals about Autism and related conditions. Then Amanda reaches this conclusion:
So then there’s this sort of urban legend, that the Internet is filled with hordes of jerks who use autism as an excuse to be jerks. And the moment an autistic person shows up using autism as an explanation of something about themselves, then that stereotype is thrown in their face.
And autistic people ourselves have certain choices of how to respond to that.
We can say, “Yes, that stereotype is true. But the people who fit it, make the rest of us look bad, make it worse for the rest of us by confirming it, etc.”
We can just watch it happen.
Or we can say, “Hey hold on a minute, that’s a stereotype, and a harmful one at that. An explanation isn’t an excuse. We do have this particular kind of trouble with language, or engaging in typical interactions, and we are going to make mistakes that can be explained by being autistic.”
I’m sure there are other things too.
But every time an autistic person uses the “They make the rest of us look bad” thing, they’re falling into the same trap as women who direct their anger at being considered irrational, at particularly irrational women, instead of at the source of the problem. They blame those who fit, or seem to fit, the stereotype, for its existence and continuance, even though that’s not the source of negative stereotypes about people.
And they then continue it.
And people then continue to use it against autistic people.
In the end, this stereotype itself looks to me like an example of something that is frequently as an excuse in order to be a jerk… towards autistic people.
(emphasis mine)
I think the people making excuses for bad behavior in many such situations are NOT the autistic people. For example, let's take a hypothetical situation (since none of us were there in the real situation) similar to the recent incident where a parent with autistic children was removed from an airplane. I'll make up a conversation:
Kid: "AHH! AHH!"
Flight Attendant: "Ma'am, you need to quiet your child. He's been screaming for several minutes."
Mom: "He's Autistic. I'm sorry. I'm trying to control his behavior, but he's very overstimulated right now and reacting to stress."
Flight Attendant: "He needs to be quiet, or you will not be able to fly with us today. I've been told by the pilot to ask you to quiet your son."
Kid: "AHH! AHH!" (starts banging head on seat in front of him)
Mother: "His condition causes him to use repetitive behaviors like headbanging and screaming when he is upset. Please give me some space and I am sure he will be able to fly calmly once I can get him to relax."
Flight Attendant: "You've got five minutes."
Five minutes later, the kid and parent are booted, as he is still screaming and headbanging.
Now, on first glance, that kid's behavior is clearly inappropriate for an airplane, and disruptive for other passengers. However, had the focus been on arranging things so that child could fly comfortably, perhaps the outcome would have been different-- or the mother could have chosen on her own not to fly with the child. Stims that are self-injurious, like headbanging (from what I understand from reading various blogs and books) often happen when the person with Autism is reacting to a stressor that they are unable to fully respond to: In this case, the crowded flight, and then the flight attendant arguing with the mother. The frustration of being under stress and struggling to communicate his needs could easily set the child off into self-injurious behavior.
Maybe the flight attendant could have gently informed other passengers that the child has autism and asked them to please keep quiet nearby and be patient until the mother was able to calm her son, or, if there was space on the plane, offered to move the child to an area where there would not be a person in the seat in front of him to be disturbed by the headbanging until he calms down. Perhaps the flight attendant could draw a curtain over the attendant seating area and allow the mother to take her son there briefly to calm down. Maybe other parents on the plane could take the opportunity to educate their own children about Autism and teach them to treat those with differences with understanding and patience.
I guess what I'm saying is that you shouldn't presume anyone who is rude has a neurological condition, but perhaps one also shouldn't presume anyone who communicates differently is rude. I think it's pretty easy to tell the difference between someone who's really being nasty and mean-spirited, someone who is obviously mentally ill, and someone who seems to be saying or doing inappropriate things but is really just not aware that they are upsetting someone, and is embarrassed, sad, confused, or angry to find out that their behavior has caused distress. In the third category, perhaps some leeway could be given.
I've continued to think about this issue personally- it IS a hard one, and it's not always easy to make sure not to give excessive slack to someone who's just walking all over you, but at the same time not presume someone is being rude or misbehaving when you are really just seeing a manifestation of a difference in the way that person communicates, and it's more like trying to communicate with someone who only speaks French than having someone intentionally being rude to you. Talking to someone who speaks only French, and you speak only English, is frustrating, and takes you way outside your comfort zone-- but they didn't grow up speaking only French just so they could someday meet you and frustrate you by trying to communicate with you any more than you grew up speaking English just to frustrate them.
One thing I'm doing with Autie/Aspie friends since this post is asking questions like, "Is there an acceptable way for me to communicate to you that I would no longer like to discuss a topic because the direction the conversation has taken is upsetting me?" Mostly the response is, "Just tell me it's time to change the subject." If someone says there's absolutely no way to tell them their actions or words are hurting you, they're probably a jerk-- but if you don't take the time to ask someone who seems not to understand social cues if there is a better way for you to communicate those feelings, and simply presume they are being intentionally rude, you're probably the jerk.
http://ballastexistenz.autistics.org/?p=520
Excerpts:
I have noticed a trend online, which is for people to say to others, “You are not autistic/AS, you are just using that as an excuse for poor social skills or an excuse to be a jerk.” I have an online friend who frequently gets this reaction, when she says something she considers just direct and someone else finds it insulting and flames her, and she tries to explain, only to get that response. Indeed, things like “Asperger’s is just an excuse to be socially inept” or “people who use Asperger’s as an excuse” have become givens in some parts of the Internet community. It is even accepted (with little to no apparent evidence) by some autistic people as fact.
It goes on with detailed explanations, which anyone not familiar with the autism spectra should really take some time to read as they explain quite a lot of the things that puzzle neurotypicals about Autism and related conditions. Then Amanda reaches this conclusion:
So then there’s this sort of urban legend, that the Internet is filled with hordes of jerks who use autism as an excuse to be jerks. And the moment an autistic person shows up using autism as an explanation of something about themselves, then that stereotype is thrown in their face.
And autistic people ourselves have certain choices of how to respond to that.
We can say, “Yes, that stereotype is true. But the people who fit it, make the rest of us look bad, make it worse for the rest of us by confirming it, etc.”
We can just watch it happen.
Or we can say, “Hey hold on a minute, that’s a stereotype, and a harmful one at that. An explanation isn’t an excuse. We do have this particular kind of trouble with language, or engaging in typical interactions, and we are going to make mistakes that can be explained by being autistic.”
I’m sure there are other things too.
But every time an autistic person uses the “They make the rest of us look bad” thing, they’re falling into the same trap as women who direct their anger at being considered irrational, at particularly irrational women, instead of at the source of the problem. They blame those who fit, or seem to fit, the stereotype, for its existence and continuance, even though that’s not the source of negative stereotypes about people.
And they then continue it.
And people then continue to use it against autistic people.
In the end, this stereotype itself looks to me like an example of something that is frequently as an excuse in order to be a jerk… towards autistic people.
I think the people making excuses for bad behavior in many such situations are NOT the autistic people. For example, let's take a hypothetical situation (since none of us were there in the real situation) similar to the recent incident where a parent with autistic children was removed from an airplane. I'll make up a conversation:
Kid: "AHH! AHH!"
Flight Attendant: "Ma'am, you need to quiet your child. He's been screaming for several minutes."
Mom: "He's Autistic. I'm sorry. I'm trying to control his behavior, but he's very overstimulated right now and reacting to stress."
Flight Attendant: "He needs to be quiet, or you will not be able to fly with us today. I've been told by the pilot to ask you to quiet your son."
Kid: "AHH! AHH!" (starts banging head on seat in front of him)
Mother: "His condition causes him to use repetitive behaviors like headbanging and screaming when he is upset. Please give me some space and I am sure he will be able to fly calmly once I can get him to relax."
Flight Attendant: "You've got five minutes."
Five minutes later, the kid and parent are booted, as he is still screaming and headbanging.
Now, on first glance, that kid's behavior is clearly inappropriate for an airplane, and disruptive for other passengers. However, had the focus been on arranging things so that child could fly comfortably, perhaps the outcome would have been different-- or the mother could have chosen on her own not to fly with the child. Stims that are self-injurious, like headbanging (from what I understand from reading various blogs and books) often happen when the person with Autism is reacting to a stressor that they are unable to fully respond to: In this case, the crowded flight, and then the flight attendant arguing with the mother. The frustration of being under stress and struggling to communicate his needs could easily set the child off into self-injurious behavior.
Maybe the flight attendant could have gently informed other passengers that the child has autism and asked them to please keep quiet nearby and be patient until the mother was able to calm her son, or, if there was space on the plane, offered to move the child to an area where there would not be a person in the seat in front of him to be disturbed by the headbanging until he calms down. Perhaps the flight attendant could draw a curtain over the attendant seating area and allow the mother to take her son there briefly to calm down. Maybe other parents on the plane could take the opportunity to educate their own children about Autism and teach them to treat those with differences with understanding and patience.
I guess what I'm saying is that you shouldn't presume anyone who is rude has a neurological condition, but perhaps one also shouldn't presume anyone who communicates differently is rude. I think it's pretty easy to tell the difference between someone who's really being nasty and mean-spirited, someone who is obviously mentally ill, and someone who seems to be saying or doing inappropriate things but is really just not aware that they are upsetting someone, and is embarrassed, sad, confused, or angry to find out that their behavior has caused distress. In the third category, perhaps some leeway could be given.
I've continued to think about this issue personally- it IS a hard one, and it's not always easy to make sure not to give excessive slack to someone who's just walking all over you, but at the same time not presume someone is being rude or misbehaving when you are really just seeing a manifestation of a difference in the way that person communicates, and it's more like trying to communicate with someone who only speaks French than having someone intentionally being rude to you. Talking to someone who speaks only French, and you speak only English, is frustrating, and takes you way outside your comfort zone-- but they didn't grow up speaking only French just so they could someday meet you and frustrate you by trying to communicate with you any more than you grew up speaking English just to frustrate them.
One thing I'm doing with Autie/Aspie friends since this post is asking questions like, "Is there an acceptable way for me to communicate to you that I would no longer like to discuss a topic because the direction the conversation has taken is upsetting me?" Mostly the response is, "Just tell me it's time to change the subject." If someone says there's absolutely no way to tell them their actions or words are hurting you, they're probably a jerk-- but if you don't take the time to ask someone who seems not to understand social cues if there is a better way for you to communicate those feelings, and simply presume they are being intentionally rude, you're probably the jerk.
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